Every child with Canavan has a smile that lights up a room — and every family deserves people who see it.

Share yours. Find yours.

When Silas was diagnosed, the hardest part wasn’t only the news. It was how alone it felt. Canavan disease is rare, and most families never meet another family who truly understands.

This page is here to change that. We’d love to see your child’s smile, hear your story, and help you find other families walking a similar road.

Share your child’s smile

Send us a photo and a few words about your child: what makes them laugh, what they love, what you want the world to know. With your permission, we may share it here so other families can see they’re not alone.

Find other families

Tell us a little about your family and what kind of connection you’re looking for. We’ll personally reach out and, when both families agree, introduce you to each other.